Thanks to the more than 150 prematurity leaders who participated in the Coalition's first Statewide Prematurity Summit, June 1 - 2, 2009 in Sacramento. The response was fantastic and the sessions were informative, interactive and inspirational!
We wish to especially thank our founding champion and fiscal supporter, MedImmune, Inc. along with the following contributors supporting the priority projects of the Coalition:
- Pacific Life Foundation
- March of Dimes
- Health Net, Inc.
- CHW, Mercy General Hospital, Sacramento
- Abbott Nutrition
- Sierra Health Foundation
Who we are: The Coalition brings together organizations, prematurity leaders and parents who are directly involved in the issue of prematurity, from preconception to NICU hospitals to long term care. Our common goal is to reduce the rate of premature births and improve outcomes for those born premature in California.
Who Attended the Conference?: Family support providers, nurses, physicians, clinical social workers, clinic and hospital administrators, women and children’s advocates, policymakers with an interest in health and prematurity, and individuals who have firsthand experience with prematurity including Departments of Public Health and Health Services staff, First 5 representatives, Family Resource Center leaders and staff, and many other committed leaders.
8.25 CME and 10.0 CEU were earned
Summit Objectives Accomplished - At the completion of the Summit, participants were able to:
• Describe the contributing factors and impact of prematurity, from preconception through long term outcomes
• Understand gaps and action opportunities in policy, resource and program areas affecting prematurity in California
• Identify specific areas for reform to reduce the rate of premature birth and increase positive outcomes for those born premature.
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Project Director: Steve Barrow
Disclaimer: Organizational affiliation is informational only and not an indication that the EC member represents that organization on the Coalition’s Executive Committee
Coalition Officers: Dr. Robert Kahle (Chair), Lydia Bourne (Vice-Chair), Erin Aaberg Givans (Secretary-Treasurer) & Paul Simms (Governance/Membership Chair)
Full Founding Executive Committee Membership List
*Sharon Saffolds/ Program Coordinator Black Infant Health Sacramento County
*Lynn Kersey/Director, Maternal and Child Health Access Los Angeles
* Dr. Robert Kahle (Chair), Secretary Treasurer, CA Assoc. Neonatologists; Medical Director, Women’s and Children’s Services, Mercy Healthcare Sacramento
*Dr. Philippe Friedlich, Section Head, CHLA Operations, Med Dir, Newborn & Infant Critical Care Unit - Children’s Hospital Los Angeles - Univ of So California Keck School of Medicine
*Dr. Bob Piecuch, Clinical Professor of Pediatrics, UC San Francisco
*Fran Todd, PNP, MHA, Harbor UCLA Medical Center
*Juno Duenas/ Support for Families & Family Voices
*Jessica Bracy/ Parent
*Lydia Bourne (Vice-Chair)/ Bourne & Associates
*Janice Milligan/ Director Public and Government Programs Health Net
*Paul Simms (Governance-Membership Chair)/ Dir Telehealth Initiative at Loma Linda Univ
* Peyton Mason-Marti, State Director of Program Services/March of Dimes CA
*Erin Aaberg Givans (Secretary-Treasurer)/ Exec Dir Children’s Specialty Care Coalition
*Wendy Stover/ NICU Nurse
*Dr. Kathy Chance/ DHCS – Department of Health Care Services
*Dr. Maria Jocson/ Public Health Medical Officer II, Maternal, Child and Adolescent Health, CA Department of Public Health
*Developmental Disability Gov Program Rep
Historically, CPIHC has enjoyed the affiliation of many of California's leaders in Prematurity, such as those listed below.
Being listed on this roster is informational only and does not imply the organization has filed a written statement of membership or support in the new group.
Abbott Nutrition - Michael Ferros; Adventist Health - Gail Nickerson; American Academy of Family Physicians-CA - Tom Riley; American Academy of Pediatrics - Kris Calvin; American Academy of Pediatrics - Dr. Carley Riley & Douglas Vanderbilt MD AAP; Aronson Public Affairs - Susan Aronson; Black Infant Health - Dr. Olivia Kasirye and Sharon Saffold; Blue Shield CA - Brenda Kaplan; Bourne & Associates - Lydia Bourne; CA Assoc of Neonatologists - Robert Kahle, MD, MSJ; CA Children’s Hospital Association - Charity Bracy and Diana Dooley; CA Dept of Health Care Services - Dr. Robert Isman; CA Dept of Health Care Services - Kathy Chance, MD and Marian Dalsey; CA Dept of Public Health - Maria A.L. Jocson MD, MPH, FAAP; CA Primary Care Association - Dr. Thom Mahoney, Steve Schilling, and Andie Martinez; California Association of Health Plans - Nicholas Louizos; California Coalition for Childhood Immunization - Catherine Martin; California Hospital Association - Debby Rogers, RN, MS and Sheree Kruckenberg; CCFY - Judy Barrett Miller; Central Valley Health Network - David Quackenbush; Children’s Hospital LA - Kathi Smith; Children’s Hosp Oakland - Susan Greenwald, LCSW; Children’s Hospital Oakland & Research Center - Surry Bunnell, RN, MS; Children’s Hospital, L.A. - Dr. Elizabeth Raab; Children’s Specialty Care - Erin Aaberg; City of Berkeley, Public Health Dept. - Margaret Thomas, PHN, MSN, CNS; City of Long Beach, Dept of Health and Human Services - Terri Nikoletich, R.N., MSN, MPH, CNS; First 5 Association of CA - Sherry Novick; Harbor UCLA Medical Center - Fran Todd; Health Net, Inc. - Ellen Brown and Janice Milligan; Kaiser Permanente - Allen Fischer; Kern County, Department of Public Health - John Nilon; Latino Coalition for Healthy California - Vanessa Cajina; LLUMC/Children's Hospital - Gretchen Page, MPH, CNM; Loma Linda University Telehealth Initiative - Paul B. Simms; Loma Linda University - Jean Newbold; Lucile Packard Children’s Hospital - Laurie A. Soman; Lung Association of CA - Laura Keegan Boudreau and Paul Knepprath; March of Dimes - Peyton Mason-Marti and Marnie Musser; Maternal And Child Health Access - Lynn Kersey; MedImmune - Amy Hamerton and Lisa Brooks, MPH; Miller Children’s Hosp - Susan Bowles, MSN, RNC; Neonatologist - Dr. Steve Gwiazdowski; Newhart and Assoc - Charlotte Newhart; NICU Nurse - Wendy Stover; Parent - Jessica Bracy; Support for Families - Juno Duenas and Linda Swan; Sutter Hospital, Sacramento NICU - Marie Koostra; UCLA School of Public Health - Michael C. Lu, MD, MPH -UCLA - Nicole Garro; UCSF Med Center - Bob Piecuch; UC SF Med Center - Steve Kloman; United Cerebral Palsy - Clark Jensen and Ronald S. Cohen, Ph.D.; USC Division of Neonatal Medicine - Philippe S. Friedlich M.D., MS Epi, MBA; USC, Center on Premature Infant - Jack Turman Jr. PhD
- Dr. Michael Lu, MS, MPH, UCLA School of Public Health
- Dr. Robert Kahle, MD, MSJ Mercy Healthcare Sacramento & CA Association of Neonatologists
- Dr. Philippe S. Friedlich, MS Epi, MBA, Children’s Hospital Los Angeles & USC Keck School of Medicine
- Dr. Olivia Kasirye Sacramento County DPH & Black Infant Health
- Dr. Bob Piecuch, UC San Francisco Medical Center
- Dr. Robert Isman, CA Dept of Health Care Services
- Dr. Kathy Chance, CA Dept of Health Care Services Children’s Medical Services
- Dr. Maria A.L. Jocson MD, MPH, FAAP, CA Dept of Public Health
- Erin Aaberg Givans, Children’s Specialty Care Coalition
- Fran Todd, PNP, MHA, Harbor UCLA Medical Center
- Gretchen Page, MPH, CNM, Loma Linda University Medical Center/ Children’s Hospital
- Lynn Kersey, Maternal and Child Health Access Los Angeles
- Juno Duenas, Support for Families/Family Voices
-Tara Robinson, Family Voices, CA Coordinator
- Dini Baker, BSN,RN, CCM, Children's Hospital Orange County
- Dr. Herman L. Hedriana, Sacramento Maternal Fetal Medicine Med Grp Inc, UC Davis School of Medicine
- Dr. Elliott Main, CA Pacific Medical Center/CMQCC Chair
- Jeanne A. Conry, MD, PhD, Chair, ACOG District IX, ObGyn Assistant Physician in Chief, Kaiser Permanente
- Jeff Gould, MD, MPH Stanford University/Principal Investigator, CPQCC
- Debra Bingham, MS, RN, LCCE, DrPH
- Paula Braveman, MD, UCSF Center on Social Disparities in Health
- Kiko Malin, MPH, MSW, Preconception Health Coordinator Maternal, Child and Adolescent Health Division California Department of Public Health
- Barbara Murphy, RN, MSN, Director, CPQCC
- Marc Thibault, MA, Gap Analysis Project
- Steve Barrow, Coalition Executive Director
2009 Summit Workshop and Plenary Topics
1. Evidenced based local prevention activities
2. Perinatal Periods of Risk (PPOR) directing local prevention activities
3. Impact of Reproductive Technology on Prematurity
4. Race, Racism and Ethnicity Impact on Prematurity
Prenatal Care in California
5. Preconception and Interconception Care
6. Oral Health & Prematurity
7. Late Preterm Birth Challenges
8. Preconception Health Care Council (PHCC) of CA
9. CA Maternal Quality Care Collaborative – Overview, Updates and Recommendations
10. CA Perinatal Quality Care Collaborative – Overview, Updates and Recommendations
11. Regionalization Impact on Health Care System
12. Reimbursement Issue and Families
13. Preterm Labor Assessment Toolkits
14. Discharge Planning Issues
15. Costs, Insurance and Reimbursement – Consumer, Provider, Health Plan and Public Sector Perspectives
16. High Risk Infant Follow up Issues, CA Children’s Services & Specialty Care Availability and Access to Care
17. Regional Centers Resource Issues, Similarities & Differences Across California
18. Tracking Data and Data Collection
19. Home Based Care and Family Support
20. Advocacy Training & Working with Policy Makers
Perinatal Advisory Council: Leadership, Advocacy and Consultation (PAC/LAC)
The California Premature Infant Health Coalition was created in 2007 to: 1. Create a strong, unified voice in California to help reduce the rate of premature births and improve outcomes for children born prematurely and their families. 2. Provide a sustainable setting to network, share best practice and other information, address policy, resource and systems change, and to help keep decision makers and the general public educated and knowledgeable about prematurity.
About the Coalition
Founding Executive Committee
Project Director: Steve Barrow
Disclaimer: Organizational affiliation is informational only and not an indication that the EC member represents that organization on the Coalition’s Executive Committee
Coalition Officers: Dr. Robert Kahle (Chair), Lydia Bourne (Vice-Chair), Erin Aaberg Givans (Secretary-Treasurer) & Paul Simms (Governance/Membership Chair)
Full Founding Executive Committee Membership List
*Sharon Saffolds/ Program Coordinator Black Infant Health Sacramento County
*Lynn Kersey/Director, Maternal and Child Health Access Los Angeles
* Dr. Robert Kahle (Chair), Secretary Treasurer, CA Assoc. Neonatologists; Medical Director, Women’s and Children’s Services, Mercy Healthcare Sacramento
*Dr. Philippe Friedlich, Section Head, CHLA Operations, Med Dir, Newborn & Infant Critical Care Unit - Children’s Hospital Los Angeles - Univ of So California Keck School of Medicine
*Dr. Bob Piecuch, Clinical Professor of Pediatrics, UC San Francisco
*Fran Todd, PNP, MHA, Harbor UCLA Medical Center
*Juno Duenas/ Support for Families & Family Voices
*Jessica Bracy/ Parent
*Lydia Bourne (Vice-Chair)/ Bourne & Associates
*Janice Milligan/ Director Public and Government Programs Health Net
*Paul Simms (Governance-Membership Chair)/ Dir Telehealth Initiative at Loma Linda Univ
* Peyton Mason-Marti, State Director of Program Services/March of Dimes CA
*Erin Aaberg Givans (Secretary-Treasurer)/ Exec Dir Children’s Specialty Care Coalition
*Wendy Stover/ NICU Nurse
*Dr. Kathy Chance/ DHCS – Department of Health Care Services
*Dr. Maria Jocson/ Public Health Medical Officer II, Maternal, Child and Adolescent Health, CA Department of Public Health
*Developmental Disability Gov Program Rep
Full Stakeholder Roster
Historically, CPIHC has enjoyed the affiliation of many of California's leaders in Prematurity, such as those listed below.
Being listed on this roster is informational only and does not imply the organization has filed a written statement of membership or support in the new group.
Abbott Nutrition - Michael Ferros; Adventist Health - Gail Nickerson; American Academy of Family Physicians-CA - Tom Riley; American Academy of Pediatrics - Kris Calvin; American Academy of Pediatrics - Dr. Carley Riley & Douglas Vanderbilt MD AAP; Aronson Public Affairs - Susan Aronson; Black Infant Health - Dr. Olivia Kasirye and Sharon Saffold; Blue Shield CA - Brenda Kaplan; Bourne & Associates - Lydia Bourne; CA Assoc of Neonatologists - Robert Kahle, MD, MSJ; CA Children’s Hospital Association - Charity Bracy and Diana Dooley; CA Dept of Health Care Services - Dr. Robert Isman; CA Dept of Health Care Services - Kathy Chance, MD and Marian Dalsey; CA Dept of Public Health - Maria A.L. Jocson MD, MPH, FAAP; CA Primary Care Association - Dr. Thom Mahoney, Steve Schilling, and Andie Martinez; California Association of Health Plans - Nicholas Louizos; California Coalition for Childhood Immunization - Catherine Martin; California Hospital Association - Debby Rogers, RN, MS and Sheree Kruckenberg; CCFY - Judy Barrett Miller; Central Valley Health Network - David Quackenbush; Children’s Hospital LA - Kathi Smith; Children’s Hosp Oakland - Susan Greenwald, LCSW; Children’s Hospital Oakland & Research Center - Surry Bunnell, RN, MS; Children’s Hospital, L.A. - Dr. Elizabeth Raab; Children’s Specialty Care - Erin Aaberg; City of Berkeley, Public Health Dept. - Margaret Thomas, PHN, MSN, CNS; City of Long Beach, Dept of Health and Human Services - Terri Nikoletich, R.N., MSN, MPH, CNS; First 5 Association of CA - Sherry Novick; Harbor UCLA Medical Center - Fran Todd; Health Net, Inc. - Ellen Brown and Janice Milligan; Kaiser Permanente - Allen Fischer; Kern County, Department of Public Health - John Nilon; Latino Coalition for Healthy California - Vanessa Cajina; LLUMC/Children's Hospital - Gretchen Page, MPH, CNM; Loma Linda University Telehealth Initiative - Paul B. Simms; Loma Linda University - Jean Newbold; Lucile Packard Children’s Hospital - Laurie A. Soman; Lung Association of CA - Laura Keegan Boudreau and Paul Knepprath; March of Dimes - Peyton Mason-Marti and Marnie Musser; Maternal And Child Health Access - Lynn Kersey; MedImmune - Amy Hamerton and Lisa Brooks, MPH; Miller Children’s Hosp - Susan Bowles, MSN, RNC; Neonatologist - Dr. Steve Gwiazdowski; Newhart and Assoc - Charlotte Newhart; NICU Nurse - Wendy Stover; Parent - Jessica Bracy; Support for Families - Juno Duenas and Linda Swan; Sutter Hospital, Sacramento NICU - Marie Koostra; UCLA School of Public Health - Michael C. Lu, MD, MPH -UCLA - Nicole Garro; UCSF Med Center - Bob Piecuch; UC SF Med Center - Steve Kloman; United Cerebral Palsy - Clark Jensen and Ronald S. Cohen, Ph.D.; USC Division of Neonatal Medicine - Philippe S. Friedlich M.D., MS Epi, MBA; USC, Center on Premature Infant - Jack Turman Jr. PhD
Questions or Feedback
To ask us a question about the Coalition or provide feedback, please email us at CAPIHC@comcast.net.
2009 Prematurity Summit - Partial List of Speakers/Presenters & Workshop Topic Overview
- Dr. Michael Lu, MS, MPH, UCLA School of Public Health
- Dr. Robert Kahle, MD, MSJ Mercy Healthcare Sacramento & CA Association of Neonatologists
- Dr. Philippe S. Friedlich, MS Epi, MBA, Children’s Hospital Los Angeles & USC Keck School of Medicine
- Dr. Olivia Kasirye Sacramento County DPH & Black Infant Health
- Dr. Bob Piecuch, UC San Francisco Medical Center
- Dr. Robert Isman, CA Dept of Health Care Services
- Dr. Kathy Chance, CA Dept of Health Care Services Children’s Medical Services
- Dr. Maria A.L. Jocson MD, MPH, FAAP, CA Dept of Public Health
- Erin Aaberg Givans, Children’s Specialty Care Coalition
- Fran Todd, PNP, MHA, Harbor UCLA Medical Center
- Gretchen Page, MPH, CNM, Loma Linda University Medical Center/ Children’s Hospital
- Lynn Kersey, Maternal and Child Health Access Los Angeles
- Juno Duenas, Support for Families/Family Voices
-Tara Robinson, Family Voices, CA Coordinator
- Dini Baker, BSN,RN, CCM, Children's Hospital Orange County
- Dr. Herman L. Hedriana, Sacramento Maternal Fetal Medicine Med Grp Inc, UC Davis School of Medicine
- Dr. Elliott Main, CA Pacific Medical Center/CMQCC Chair
- Jeanne A. Conry, MD, PhD, Chair, ACOG District IX, ObGyn Assistant Physician in Chief, Kaiser Permanente
- Jeff Gould, MD, MPH Stanford University/Principal Investigator, CPQCC
- Debra Bingham, MS, RN, LCCE, DrPH
- Paula Braveman, MD, UCSF Center on Social Disparities in Health
- Kiko Malin, MPH, MSW, Preconception Health Coordinator Maternal, Child and Adolescent Health Division California Department of Public Health
- Barbara Murphy, RN, MSN, Director, CPQCC
- Marc Thibault, MA, Gap Analysis Project
- Steve Barrow, Coalition Executive Director
2009 Summit Workshop and Plenary Topics
1. Evidenced based local prevention activities
2. Perinatal Periods of Risk (PPOR) directing local prevention activities
3. Impact of Reproductive Technology on Prematurity
4. Race, Racism and Ethnicity Impact on Prematurity
Prenatal Care in California
5. Preconception and Interconception Care
6. Oral Health & Prematurity
7. Late Preterm Birth Challenges
8. Preconception Health Care Council (PHCC) of CA
9. CA Maternal Quality Care Collaborative – Overview, Updates and Recommendations
10. CA Perinatal Quality Care Collaborative – Overview, Updates and Recommendations
11. Regionalization Impact on Health Care System
12. Reimbursement Issue and Families
13. Preterm Labor Assessment Toolkits
14. Discharge Planning Issues
15. Costs, Insurance and Reimbursement – Consumer, Provider, Health Plan and Public Sector Perspectives
16. High Risk Infant Follow up Issues, CA Children’s Services & Specialty Care Availability and Access to Care
17. Regional Centers Resource Issues, Similarities & Differences Across California
18. Tracking Data and Data Collection
19. Home Based Care and Family Support
20. Advocacy Training & Working with Policy Makers
Sponsorship Provided by:
Perinatal Advisory Council: Leadership, Advocacy and Consultation (PAC/LAC)
Vision Statement of the Coalition
It is the vision of the California Premature Infant Health Coalition that all women receive the societal support and the ongoing health care necessary to prevent prematurity, when possible; and if not possible, that those infants born prematurely and their families receive the ongoing care and support necessary to ensure the best outcome.
It is the vision of the California Premature Infant Health Coalition that all women receive the societal support and the ongoing health care necessary to prevent prematurity, when possible; and if not possible, that those infants born prematurely and their families receive the ongoing care and support necessary to ensure the best outcome.
Want to Contribute to the Coalition?
If you would like to become a stakeholder member of the California Premature Infant Health Coalition or would like to make a contribution, please contact Steve Barrow at scbarrow@pacbell.net.
If you would like to become a stakeholder member of the California Premature Infant Health Coalition or would like to make a contribution, please contact Steve Barrow at scbarrow@pacbell.net.
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